We are blessed that for the most part our busy is all therapies and consults and not big problems. Addie's right ear drum ruptured again during the Hydro Angels Over Texas meet up on January 29th. For those playing the home game, that's three times in two months. Twice in two weeks! I took her to her pedi the next day and our pedi feels like it is time for tubes. When Grayson went through this, we had to wait for six infections in six months. No thank you!! Addie goes backwards with her baby food feedings every time she starts antibiotics so it'll be good to get her ear issues fixed!
Then of course our follow up with Dr. George is right around the corner. I think about this too often. I'm very anxious to see her scans and hear his plan of action. Addie's head circ is up to 50.5 cms (what it was at birth). So she's consistently going up .75 cms a month. At this rate she will pass up my head circ within the year. So I feel like something needs to be adjusted. She's still showing no signs of shunt failure. Her soft spot is still very sunken and she still is hitting milestones. Though we have hit a slowdown with her physical development. She has weakness on her left side and it affects her upper body strength more than her legs it seems. So we are really working on transitions from sitting to tummy and getting her to weight bear on her arms while propped up on all fours using a pillow.
After her appointment with George, she has her nine! month well baby with her pedi. I pray we don't have to see her pedi before then. At her last sick check I mentioned to her doc that I had tried to get her into her ophthalmologist sooner than our May follow up and couldn't - she was completely booked. Her pedi was surprised that we had not gotten a diagnosis of strabismus yet. That she could even tell that Addie has strabismus. So she had her nurse call and get us in sooner. So February 29th we go back to the eye doc with photographic evidence this time. There is a chance that Addie will be rocking a pirate princess eye patch in the near future!
Of course all of these appointments are on top of therapies once or twice a week and Jackson's speech once a week and getting Gray to school and supervising his homework every night. Plus our PT has decided it's time to get Addie assessed by the OT now that she's old enough that her fine motor is developing on it's on and is not so tied into her gross motor development.
So yes. February is busy!!
We had all of my family over for the Super Bowl and to celebrate the boys and Raychel's birthdays. I will leave you with some pics from the party and this past week!
|Trying Mum Mums for the first time! So exciting to see her interested in self feeding!|
|Making a silly face while PawPaw holds her!|
|Grinning at MeMaw while I was trying to get the picture.|
|Raychel stealing kisses!|
|Dressed to party!|
|She LOVES her big brother!|
|First successful apples with rice cereal feeding!|