Too quickly it was time to say bye to Adam's family Sunday morning. As a family of four, we mainly stayed in the hotel the rest of the trip. It was more of a laid back trip this time around, as it's Adam's last vacation time before Addie's next infusion in June.
We did get to try The Pit BBQ restaurant in Raleigh this trip and enjoyed it! Definitely worse going back to it next trip. Their banana budding is AMAZING!
Tuesday was our infusion day. We didn't need to be at the hospital til 10:30am.
|In the car on the way to Duke|
|We were greeted with Christmas Carollers in the lobby|
Miss M was born just three days after Addie and her mom and I met on a support group on Facebook. We were able to schedule their infusions for the same day! We ran into them in the hall way before we were called back for Addie's initial exam and then we were placed in the room next to them for the actual infusions.
Addie did great during her infusion! She watched the entire process, wanting to sit up and NOT lie down this time.
They got her IV started on the first stick which was great! Dr. K was very impressed with how well Addie is doing. She said she was prepared to see a totally different child based on her head circumference increase and the fact that her scans don't show a difference in her ventricles since August. Her words were "She's doing much much much better than her scans and head circumference increase would have indicated." She does want me to follow up with George about the lack of decrease in ventricle size, which I had already intended to do, but it will be nice to have a litle medical enforcment when we see him in February.
As we were being discharged, Dr. K and I were marveling at what she might be doing by the time they see her for her third infusion. Dr. K said "She'll be walking!" Very exciting to think of the possiblities! We're thrilled with how well she's doing and pray she continues to do as well, but we know there are many ups and downs with hydro. We celebrate all the good days and all the milestones and are still trying to enjoy every moment!
We flew home to find an inch of ice on our windshield that had been sitting in long term parking for five days! It was good to be home though. Addison is still a great traveler, though she did not want to go to sleep on the plane. I think she was scared she'd miss something. She is a very curious little girl, which I love!!