Saturday, August 27, 2011

Stem Cell Trip

Adam, Addie and I traveled to Raleigh Durham on August 13th. We were originally supposed to go in July but because of Addie's shunt revision surgery it got postponed. Thankfully, because it got pushed to August, Adam was able to take a weeks vacation instead of us trying to fit it all in 3 days. This turned out to be a very, very good thing. We were able to take it slow and enjoy our mini vakay instead of stressing out and rushing.

I'm happy to report that Addie is a fantastic flier.

Some kiddos with hydro I've read have issues with the changes in cabin pressure. Addison seemed to be unaffected. She does, however, have butt bomb radar when it comes to getting on an airplane. BOTH times before we boarded the plane she had a blow out. On the way to Raleigh, I noticed it like 5 minutes before we boarded and had to take her and RUN to the bathroom, change her and her outfit and run back. We flew Southwest and had to get three seats together, so boarding on time was crucial. I made it back, barely.

We had a layover in Nashville both there and back and we enjoyed the break in time on the flights. The flights are pretty easy though. An hour and half and then less than an hour. So a nice way to break it up. When we fly back for her next infusion, I'm going to do my best to have our layovers in Nashville again for that reason. One of the connection options is Phoenix. Um Hello???

We stayed at a hotel near the airport and really enjoyed our time in Raleigh. The temperature was 20 degrees cooler than in Texas and everything was so green and lush. Trees everywhere. We took advantage of our extra time and explored the area. Ate at a Longhorn Steakhouse for lunch, somewhere we frequented often when Adam lived in Jacksonville and we were dating long distance.

Monday we ate at a local seafood restaurant Adam had found on Yelp! and then walked around the farmer's market. I bought some green peanuts and Adam got some apple butter to take back home. We decided to head on to Duke University to explore the campus, knowing we'd be too tired after our hospital visit Tuesday to truly enjoy it. The chapel on campus is stunning. I took a million pictures, both inside and out, but they do not do it justice.

Bored already.

We were there right at 5:00pm when the bell tower went off. It played for 15 minute and was a very cool experience. Addie, however, seemed to not like the noise at all.

We went back to the hotel, ordered some delivery and gave Addie a bath. She loves the water!

We were at Duke Children's Health Center all day Tuesday.

Walking into the McGovern-Davis Children's Health Center at Duke

Addie's favorite toy, Minnie!

Addie had to be quarantined because of her TB exposure in the NICU, but other than that everything went smoothly. They only had to stick her twice to get her IV started. Her stem cells went in around 1pm. She loved Trey, the music therapist who came to play guitar and sing to her while they were getting the IV started. Course as soon as they poked her, the music held no appeal.
Transfixed by Trey!

Thankfully, that was the worst part - the needle poke. She fell asleep shortly after the infusion began, exhausted from all the crying.

Stem cells are going in!!! Dr. Kurtzberg, Addie and I

Good to the last drop!

We were released around 5pm. On a funny side note, Jeff Foxworthy was outside of our hospital room doing interviews for a Children's Miracle Network commercial.

Jeff Foxworthy in the green shirt.

We left Duke, went by the gift shop to pick up some t-shirts for the kids, and then went back to our hotel to pack up and get ready to go home.

We had a safe flight home. Addie smiled several times for me on the way home. Praying those stem cells do their job and fix any areas that are damaged in her little brain.

Addie slept the whole way home.

She's supposed to have another infusion when she's six months old. We are waiting to see if insurance covers the infusion or not. If it does, we'll go back right at her six month birthday to get another infusion in this calendar year, when she's already met her deductible and max out of pocket. We're looking forward to seeing Raleigh Durham in the Fall. We'll probably take four days again and take it leisurely, though we are talking about taking Jack with us this time and leaving Grayson in school, with his Dad. We can fly Jack and lap baby Addie for the same number of ticket purchases. Excited to see where Addie will be developmentally in three more months!!

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